As promised, a quick update on where I’ve been the last few weeks. Two weeks ago, I went to London to see a lovely consultant who after a cystoscopy (procedure to look into the bladder) under general anesthetic diagnosed me with Interstitial Cystitis, complete with signs of ulcers. As angry as my bladder looks now, I can only imagine had I had the cystoscopy last October, my bladder would have been far worse.
As awful as that diagnosis sounds, I am glad to finally actually be told this is what I have. The photos taken of the inside of my bladder make me wince when I look at them, red and inflamed. I can’t believe it’s taken a year to get a proper diagnosis, but it has, and unfortunately I’ve been unable to go back to work. If you’re diagnosed with this in the US, you’re eligible for disability benefits.
Looking at the statistics of Interstitial Cystitis, over 90% of sufferers are female. Of those, it’s estimated that 1/3 have had a hysterectomy. Women can go into full remission when pregnant. What’s the common denominator here? Hormones. And mine have been all over the place since I ran that 5k.